This is not a blog about how I overcame disability. It is not proof “if she could do it so can you.” It is the journey of how I live each day with my disability, learning how to farm, homestead and navigate the medical system.
I have Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Mast Cell Disorder, Migraines, Ataxia, Asthma... and they affect my quality of life daily. I went through years of bed ridden days/weeks/months, hospitalization, tears on the floor, doctors appointments, tests, treatments, therapies, interventions, many of which did not work. Many doctors who just didn’t know what to do with me. A lot of waiting and putting my life on hold while I got sicker and sicker. I am not “fixed,” but I have found ways to adapt the world around me so I can live a meaningful life while disabled.
This blog and all the related social media, is my story. Within are the strategies/adaptations I have found helpful to be a more active participant in my own life. I hope that others may find some of these strategies helpful for them to reach their goals as well.
One of the differences between myself and others who appear less able, is access to resources. Without the incredible support and adaptive equipment I have access to, I would not be able to do any of the things I do. I will be posting about my resources, interventions, how I accessed interventions and adaptive equipment in addition to adapted homesteading skills.
Please join the conversation here or over at the Facebook group: “Homesteading with a Disability” to connect with others who are similarly struggling and succeeding. We share lots of ideas, photos and support within the group.
This blog is dedicated to my greatest cheerleader and the person who reminded me “you must always have hope, even if only a sliver,” Dr. P. Dukesz. Thank you for your unyielding support, and always trying - even when you aren’t entirely sure what we should do next. You never give up on me, and most importantly, you never let me give up on myself. Thank you for all your compassion.